Position: Director, Information Technology & Data Management
Department: IT and Operations
Reports to: Reports to the Chief Financial Officer.
Location: The Lung Health Foundation is based in Toronto and operates in a hybrid model, in which staff are required to work at the office a minimum of two days each week with occasional travel within Ontario and across Canada as required.
Salary range: $95,000 - $115,000
Vacancy: This position will fill a vacancy.
____________________________________________________________________ ABOUT THE LUNG HEALTH FOUNDATION Imagine a future where people living with lung cancer have a fighting chance. Where no one loses a loved one to asthma. Where people with chronic obstructive pulmonary disease (COPD) live life to the fullest. Where older adults maintain their independence. And where future generations are spared the debilitating effects of lung disease. At the Lung Health Foundation (LHF), we’re committed to making that future a reality—starting now.
Our MissionWe work to improve the lung health of Canadians through:· Groundbreaking research· Policy and practice change· Urgently needed programs and support· Public education on critical lung health issues At the core of our mission? Helping those impacted by lung disease.
POSITION OVERVIEWThe Director, Information Technology and Data Management is a strategic and operational leader who translates abstract stakeholder needs and emerging healthcare technology into a 5 to 10-year strategy that can be executed across the organization. The Director, Information Technology and Data Management oversees and advances the Lung Health Foundation’s technology and data environment to meet evolving organizational, programmatic, and reporting needs. This position has accountability across two interconnected areas of responsibility:
Information Technology (IT) - Leading LHF’s technology infrastructure, systems, and operational IT needs to ensure secure, efficient, and scalable platforms that support priorities and day to day operations.
Data Management and Strategy – Leading the development and advancement of a new lung health data ecosystem, including the long-term vision for a centralized lung health data hub and the structures and partnerships required to support it. Canada currently faces a gap in comprehensive and accessible lung health data. As part of the Lung Health Foundation’s 10-year strategy to become a national leader and trusted source for lung health data and research, this role will play a key leadership role in shaping and operationalizing the organization’s central data hub. This includes establishing the frameworks, partnerships, and infrastructure required to collect, integrate, steward, and responsibly share health data across research institutes, government partners, health system organizations, and other stakeholders. As the organization expands its ability to collect and use data from programs, partners, and audiences, this role will lead the development of strong data governance, privacy, and analytics practices, with particular emphasis on the responsible management of health data and the development of secure data and reporting tools that help the organization make informed decisions. The Director ensures that technology and data practices support the organization’s mission, cross-functional priorities, and longer-term direction. They provide leadership across IT operations, data governance, privacy, analytics, and the advancement of the data hub, while helping build organizational capacity for data-informed decision-making and stronger stewardship of health data.
RESPONSIBILITIES Overview of Vendor Relationship (BIT)The Director, IT & Data Management works alongside our managed service provider (BIT), who is responsible for technical onboarding, Microsoft 365 setup, end-user help desk support, device configuration, basic hardware troubleshooting, and management of LHF’s phone system. While BIT provides day-to-day managed IT services, this role provides stratgic leadership and organizational oversight of internal systems, data governance, cybersecurity practices, Salesforce administration, IT policies, staff training, and the long-term development of LHF’s technology and data environment, including the health data hub.
Data Hub Creation & Data Management
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Lead the development, integration and long-term sustainability of LHF’s central health data hub, including contributing to vendor selection and guiding the design of the infrastructure, integrations, governance model, and operating approach required to support LHF’s 10‑year data strategy.
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Oversee the collection, management, integration, and stewardship of lung health and broader health data from internal programs, research institutes, health databases, government partners, and other stakeholders.
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Lead and support the development of data-sharing agreements and related governance processes with research institutes, government bodies, health system partners, and other collaborators, in partnership with Executive Leadership Team (ELT).
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Manage organizational data systems, including CRMs, client databases, donor systems, and all software platforms used across the organization.
Salesforce Infrastructure, Reporting & Integration
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Lead the continued development of the Salesforce infrastructure needed to support teams across the organization, including the design, system architecture, workflow configuration, development, and ongoing maintenance of dashboards and reporting tools that support planning, performance tracking, decision-making, and impact measurement.
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Oversee Salesforce data mapping, structure, and integration with other platforms to support accurate and reliable data flow, consistent reporting, and effective use across teams.
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Partner with internal teams to identify Salesforce needs, improve user adoption, and strengthen the organization’s ability to use Salesforce effectively.
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Ensure Salesforce data integrity through strong governance, quality controls, documentation, and alignment between Salesforce and connected systems.
IT Operations & Infrastructure Management
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Oversee the vendor for the maintenance, performance, and security of all hardware, software, networks, and cloud services.
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Coordinate with BIT on technical onboarding, user account setup, device configuration, and ongoing IT support needs.
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Maintain internal IT documentation, asset tracking, and inventory management processes. Manage vendor relationships, contracts, and service-level agreements for systems supporting IT and data operations (including BIT).
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Ensure reliable, secure, and cost-effective IT operations, including device management, telephony, and coordination with BIT’s help desk and systems support.
Technology Leadership & Strategy
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Shape and implement an organization-wide IT and data roadmap aligned with mission, program priorities, operational requirements, and the organization’s evolving role as a steward of lung health data.
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Assess emerging technologies and recommend improvements for efficiency, service delivery, and impact measurement.
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Lead planning for digital transformation, major system upgrades, and long-term infrastructure needs.
Cybersecurity, Privacy & Risk Management
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Oversee IT security protocols, disaster recovery, and business continuity planning, in collaboration with vendor (BIT).
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Ensure LHF compliance with applicable health data privacy requirements, including PHIPA, as well as relevant nonprofit regulatory obligations.
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Conduct regular vulnerability assessments and lead cybersecurity awareness training across the organization.
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Ensure LHF remains compliant with applicable health data privacy and security requirements, including PHIPA, through oversight of organizational data governance, IT security protocols, disaster recovery, and business continuity planning in collaboration with BIT.
- Conduct regular vulnerability assessments and lead cybersecurity awareness training across the organization.
Team Leadership & Collaboration
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Supervise IT staff, consultants, and contractors; foster an inclusive, service-oriented culture.
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Partner with teams across the organization to improve digital literacy and data fluency.
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Serve as a trusted advisor to senior leadership on technology, data, cybersecurity, privacy, and health data management implications for organizational planning and execution.
Budgeting & Resource Management
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Develop and manage the IT and data operations budget.
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Optimize costs through strategic procurement, vendor negotiation, and lifecycle planning.
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Identify opportunities for IT-related grant funding or donated technology solutions.
QUALIFICATIONS Education & Experience
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Bachelor’s degree in Information Technology, Computer Science, Data Management, or related field (Master’s degree preferred).
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8+ years of progressive IT, data, or digital leadership experience, preferably in a nonprofit, healthcare, research, or other mission-driven environment.
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Experience establishing and/or managing data systems with strong governance requirements, including health data, research data, CRM platforms, donor databases, or client service systems; experience working with health databases such as CIHI is considered a strong asset.
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Demonstrated experience with cloud environments, cybersecurity frameworks, and enterprise applications.
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Knowledge of PHIPA requirements and experience working with data systems and governance practices that support health privacy compliance.
Technical Skills
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Deep expertise in Salesforce administration and architecture, configuration and robust business reporting including managing data structures, workflows, integrations, user roles and system scalability.
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Strong knowledge of network administration, cloud platforms (Microsoft 365, AWS), and enterprise security practices.
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Proficiency in data management, SQL databases, analytics tools, and data governance frameworks.
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Familiarity with API integrations, automation tools, and low-code/no-code platforms.
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Experience overseeing vendor-led implementation of systems and data platforms
Leadership & Interpersonal Skills
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Excellent communication and stakeholder engagement skills.
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Ability to translate complex technical concepts into clear insights for non-technical audiences.
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Commitment to collaboration, equity, and supporting mission-driven work.
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Proven ability to lead teams, manage projects, and deliver results in a dynamic environment.
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Growth mindset.
TRAITS AND SKILLS The ideal candidate will be:
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Comfortable navigating change and ambiguity
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Diligent, organized, and solutions-focused
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Coachable and committed to continuous learning
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A clear and effective communicator
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Supportive, and collaborative
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Driven by principles of equity, inclusion, and respect
OUR VALUES We are looking for individuals who:
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Lead with courage and passion
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Embrace collaboration and teamwork
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Are adaptable and forward-thinking
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Act with integrity and accountability
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Are committed to the communities we serve
WHY THE LUNG HEALTH FOUNDATION? We offer more than just a job—we offer a mission-driven environment where your work truly matters. At LHF, you’ll find:
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A collaborative, creative, and supportive team
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A healthy work‑life balance supported by a 35‑hour workweek
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Flexible, hybrid work arrangements, including the ability to work remotely from almost anywhere for up to two weeks per year.
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A designated weekly Community Day, when all staff work onsite to support collaboration.
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A robust benefits package, with 50% employer‑paid premiums (beginning after 3 months of employment).
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RRSP matching up to 5% (beginning after 12 months of employment).
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20 days of paid vacation, plus:
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A Summer Fridays initiative offering a ½‑day schedule during the summer months, from end of May to end of August.
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Office closure over the winter holiday period.
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Opportunities for personal and professional growth
The Lung Health Foundation is committed to providing a barrier-free work environment in concert with the Accessibility for Ontarians with Disabilities Act and the Ontario Human Rights Code. As such, we will make accommodations available to applicants with disabilities upon request during the recruitment process.
The Lung Health Foundation is an Equal Opportunity Employer and is committed to the principle of equal employment opportunity for all employees and to providing a work environment free of discrimination and harassment. All employment decisions are based on business needs, job requirements and individual qualifications, without regard to race, colour, religion or belief, national, social or ethnic origin, sex (including pregnancy), age, sexual orientation, gender identity and/or expression, marital, civil union or domestic partnership status, family or parental status, or any other status protected by the laws or regulations in the province where we operate. At the Lung Health Foundation, we value the insights and innovation that diverse and inclusive teams bring to work.
LHF’s hiring process is human‑led, and we do not use AI to screen candidates. 